Saturday, July 16, 2016

For this time being "Negative" is awesome


So have you ever found yourself saying something like this....

"Oh the kids get that from my side of the family...or  "She is so like her dad when she does that."? 

I have said that plenty of times...usually in relation to a habit or personality trait that is a little annoying !

Well back in the early 90's when I was 22 years old I along with my two sisters I learnt that we had indeed been given something "special" from my dad and his lineage.

That "specialness" came in the form of a condition called

Malignant Hyperthermia
{Which is an inherited muscle disorder that may be triggered in sensitive people by many commonly used general anesthetics and muscle relaxants.
Those sensitive to MH may develop uncontrolled muscle spasm and a rapid rise in body temperature. Breathing may become deep and fast and heart rate can become rapid and irregular.}

All three of us girls were found to be positive or sensitive to this condition.
The procedure was a Muscle Biopsy whereby a piece of muscle was removed from the leg and tested under controlled conditions to determine it's sensitivity to the anesthetic agents

It was a painful process and rendered us off our leg for a few days and a further few weeks of light recovery.
Other than that I have never needed any surgery or incidents to put me at danger.

What we always knew was that one day we would have to learn if we pass this condition on to our children....

Fast forward twenty five or so years and we now have 12 children between us and 3 of those are teenagers who are beginning to make a way for themselves.

So three weeks ago my nephew was the first to agree to be tested...NEGATIVE.

Our Meg was the next that volunteered to find out....in preparation for her up coming plans she felt it was important to know for sure one way or the other...
finding a time that would allow for her to be potentially out of dance for 6 weeks was tricky but with all her audition work finished now was as good a time as any.

So yesterday she bravely faced up and underwent her own procedure....

Negative!!! 
We were all pleased {none more than her grandfather I am sure} that she can now go forward not having been blessed with the gift from my family.

So 2 grandchildren down.....eventually 9 more to go.... age plays a part in being able to undergo the procedure so until then we take the necessary precautions and pray that they will stay far away from any emergencies. 
 
 


Sunday, July 10, 2016

Caught!!!!




We may be found guilty....of enjoying the sunshine today ........catching "pokemons" !

Thursday, July 7, 2016

Lights Camera Dance




I spent the morning with my girl today capturing her on camera.

It is always beautiful to see her dance but it was fun today to be the roadie and cameraman...camera mum.

She has put a lot of work into get her audition tapes compiled for studies next year.....you never know it may just be the camera work  that gets her across the line. LOL

Wednesday, July 6, 2016

Pie face fun with friends


What else do you do on a day where you have 3 extras and a little sunshine???

Play a crazy game involving whipped cream and a trigger that is very random.......
 





and when every one has had their fill of cream in their face,up their nose and in their hair.....

Make banana splits for everyone......

and yes I did  have a turn...but managed to avoid the cream going off on my turn!!

Thursday, June 30, 2016

Nearly gone

With just 50 school days left ever for our teen and two terms left at primary school for our other child, this little moment in time will soon be long gone.....

A moment where wet shoes left one without footwear...the other coming to the rescue.

When they start school these days just sem so long away...

Well they are here!!
 
 

Tuesday, June 28, 2016

A moment to breathe and celebrate


33 years with this guy.....28 years married this last weekend was worth taking a couple of days out and hanging together.

So ...we did. Hang out, enjoy the nothing that was for a couple of days.

It was cold and it just reminded us of the cold wet day we said those words of promise to each other... So much has come our way to make us who we are today.....
so glad I have had this guy to do it all with.

 

Thursday, June 23, 2016

Driving, dancing and growing up

I have shared the good stuff going on for the two males in our family....

So what's up with our girl......



Lots of time and effort have gone into passing the all important mid way driving test! 
Woo hoo is all I can say....we are now just 25 hours / 6 months away from the finish line...much rejoicing in our house is happening. Funny how she really is much more drive ready, half way through the learning process than we were when given our full plates!!

The other time allotment for her has been on her dance....yes she is the determined dancer in the family....and with just over three months left of her school life all attention is being focused on what next.

So the next three weeks are all about fine tuning and pulling together audition work for the application of courses for next year. Thankfully because we live in the most isolated city in the world most auditions can be done via recording and not made in person. ( Although I would be more than happy to trip around the country with her for the auditions)
So I have a few months in which to come to grips with our girl potentially heading off into the big wide world without us....{insert pounding heart and sweaty palms here!}
 We have always encouraged her to follow her dreams and so now we must stick to that despite how hard it is to let go.

Unfortunately the lovely little part time job she had close to home came to a sudden end when the business closed a couple of months ago. So after some financial independence she is feeling a bit blue without it....not that at the moment there has been too much time to commit  to work.

In three weeks - hopefully after the completion of audition work- she will be having a little surgery to determine whether she has inherited a familial genetic condition related to anesthetics. This will put her out of action for a few weeks but something that she will be better off knowing about going forward. So the race is on to have all her physical work done and ready for submitting.

So nothing much happening at all! 

It just seems like only yesterday she was beginning to dream about what life at 17 turning 18 would be like and where she would be.......and here we are.... {sigh}

 

Monday, June 20, 2016

Birthdays, fire, friends and bees


So while our boy has many things going on for him.....we celebrated the biggest boy in our house. It was birthday week.....well birthday five days.
This very same time last year we were ducking and weaving a big birthday number, the coming to an end of his employment after 20 years and the partial ending of my job that I loved......to say we were a little displaced would be an understatement......oh yes we had an assurance that it would all be ok and that an adventure was just beginning for us....but still a little apprehensive about what lay ahead.

Well here we are.....another birthday ...this less daunting in a strange way.....there has been an embracing of it all. This year we were introduced to the "birthday eve" celebrations....apparently that is what you are entitled too at this age now! (sorry honey we had no notice and so will do better with that next year)

But we did hit the present giving perfectly this year....fire.....and bees

What male doesn't like poking around with a fire? So a fire pit was built and we enjoyed two beautiful winter evenings with family and friends, yummy food and good conversation....something about the sitting around the fire that brings a good flow of conversation. 
He has wanted for the longest time his own bee hive....and hooray he got one (to babysit/foster/nurture and hopefully reap some honey in the months to come) delivered by our very friendly bee keeping friend.

Looking back we have been on a journey  and although we are still on this part of it we are thankful for good friends and close family ties that have encouraged us along the way.....


Happy Birthday  to you......here's to an awesome trip along this thing we call doing life.

 







Wednesday, June 15, 2016

Cupcakes and soccer and being brave

We are in a season as a family where I feel that for each of us we have our own biggish things going on......

So our boy has...
 all that comes with finishing primary school and making decisions about high school for next year......

Soccer is happening and he has had the opportunity to try out for a regional team heading towards "county week " in October.

A little procedure to remove something from his  tongue also has been on our agenda for a while. Seeing him overcome some perceived fears was awesome.

Random collection of happenings that are significant for him.....and because he isnt flying solo through all of these things it adds to the colours of our week. I know in the very near future I will look back and miss all these things that seem to take up so much planning, running around and mum involvement.

I quietly was very proud of my contribution to the cupcake stall raising funds for the soccer club......just another thing to add to the mummy resume along with taxi driver, nurse, hug provider, loudest supporter on the boundary line, braving the freezing evening training times,"application form writing encourager"......and all supposed to be done with a smile! 





Saturday, June 11, 2016

Family time

In the whirlwind that is the days passing...I need to stop and reflect on the little things...take notice of the quiet things...I seem to have lost my way with it all......
My camera hasn't been out much...it is a tool that really lets me see things a bit clearer.

So plugging it in to my computer tonight it has reminded me that just a few short weekends ago my whole family gathered down south to celebrate my dad's 75 th birthday....His wish,that we spend some time together as a family....so we did all 20 of us and a few extras during the weekend.

And yes it was only a weekend away from being officially Winter and yes the kids did go in the ocean.....we had cyclonic winds on the Friday night...and the most perfect of weather for the rest.... 

















video

We really are blessed...now to keep that in mind while all the tricky stuff goes on.......

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